Showing posts with label nj tube. Show all posts
Showing posts with label nj tube. Show all posts

Thursday, December 1, 2011

Still Not Being Fed :(

Well, as you can probably guess, they tried again last night and was unsuccessful at getting a NJ tube in Wendy. The doctors are now deciding how badly they want her to have one. If they decide it's worth being exposed to radiation they will put it in using fluoroscopy. So for now, she is still on the tpn and lipids. Either way, whether they get a NJ tube in or not, I really hope these next two weeks goes by fast. I hate seeing her with a tube in her nose and I hate the thought of her being hungry. Either way it sucks for me! Also, they won't be able to take her picc line out until she gets on full feeds. Many prayers would be appreciated, for me and Wendy. Wendy needs them to heal and I need them to keep me sane, because my heart is aching seeing her like this. I keep telling myself, it'll be over soon. I kind of feel like that's a lie though. I've been saying that since I got put in the hospital on Sept 6. And I know that even when Wendy comes home her life (and mine, essentially) will be loaded with doctor appointments. But at least once she comes home she will feel like my baby. I almost feel like I'm just borrowing her now because I have to leave her every night. In 17 days on dec 18 I will be 22 years old. If Wendy could come home around then, it would be the best present I could ever hope for.

Wednesday, November 30, 2011

Poor Little Wendy Can't Catch A Break


When we talked to the doctor this morning they confirmed that they were going to give her a NJ tube (the one that goes past her stomach) and begin feeds tonight. So we left and when we came back she did have a tube in her nose, however they said they can't use it. They said they couldn't get it past her stomach into the jejunum. They tried twice and said they would have another nurse try tonight. If they didn't get it on the next try then it would be up to the doctors whether they wanted to continue trying or whether they are just going to keep her on tpn and lipids until her G tube starts working. Every time they try to put it in, they have to do an xray and they have to decide if it's worth exposing her to radiation. She can live and grow with the nutrients in the tpn and lipids, but it does nothing to eliminate the hunger. My poor baby has gone without food in her belly for almost 2 weeks now. And she has another 2 weeks before they attempt to feed her through G tube again. The thought of her being hungry hurts my soul. And even if they get the NJ tube in, feeding her through there won't make her feel full because it's not going into her stomach, but they said it'd be better than what's she's feeling now. Plus breast milk is so much better for her. I'm praying things look up soon. It seems like all we've gotten lately is more and more bad news.