I have not been updating as much as I used to, so I wanted to do a quick blog to let everyone know what’s going on with Wendy and what we will be up to in the following weeks.
If you follow us on Facebook, you’ll probably already know that Wendy got sick with a cold 3 weeks ago. That made us have to postpone her swallow study, which will now be done this coming Monday, April 8.
Yesterday, she had her post op appointment with her surgeon. Dr. Wulkan said she is healing well. The incision looks great. Her rectum is soft inside (which is a very good thing) but that we could continue to dilate her once a day/every other day, just to help keep it soft so she continues passing stool easily. Wendy is having between 2-4 bowel movements a day, which indicates that she will be able to control her bowels, so she should be able to potty train and not constantly have an output of stool (like her colostomy, she could not control when she went). He also said her yeast infection/diaper rash doesn’t look that bad; he said he’d seen much worse in kids who had imperforate anuses and that we should continue what we’re doing and her skin will eventually toughen up. We go back in 3 months for another check up. We will continue to see Dr. Wulkan until she is ready to potty train, then we will go to the colorectal clinic at CHOA where they will manage her until she is older. Here’s a link for the clinic to give a little more info about what they do- http://www.choa.org/Childrens-Hospital-Services/Pediatric-Surgery-Georgia/Specialties/General-Surgery/Colorectal-Clinic. As far as the little bit of granulation tissue and redness around her g tube, he said it’s nothing to worry about and doesn’t seem to be bothering her so as of now, it’s not an issue to be concerned with.
Another exciting thing is the Elberton Civic Center has been booked for June 1 for the Warriors for Wendy pageant. The proceeds will be donated to the Ronald McDonald House, so we are very excited about it and super thankful to Shining Moments Pageant Productions for hosting! Here’s a link for the event page on Facebook Warriors for Wendy Pageant, Facebook as well as a link for paperwork Entry Form. Here is all the info for the pageant as well Pageant Info. Even if you don’t have a child/teenager to enter in the pageant, you can still attend or purchase a t-shirt. Donations are also welcome. If you have any questions about t-shirts or donations, you can email me at email@example.com and I will be happy to help. Last year, in Wendy’s honor, we raised almost $2,000 for March of Dimes. This year we wanted to give back to RMHC because it’s an amazing organization that helps so many families, including ours. We have been blessed to have insurance and have been able to pay for Wendy’s medical treatments, medications, hospital stays, supplies, etc so since there are so many people who have offered to do fundraisers for us, we decided we wanted to give back to those who truly need it instead. So thank you to everyone who has bought a shirt and supported us. (Also, I still have Wendy’s Warrior bracelets for sale 1/$3, 2/$5 plus $2 shipping if needed, if anyone wants one.)