The government is so twisted, it's ridiculous.
And frankly, it pisses me off that so many people easily get on Welfare and food stamps, but when it comes to trying to get Medicaid for my disabled daughter, it's like jumping through hoops that are set on fire and trying not to get your butt singed.
When Wendy was born, the social worker at Vanderbilt told us to apply for SSI because Wendy had a permanent disability and we would be able to use the money to take care of her and to supplement the income that I would never have the opportunity to make because I would be staying home to care for her. Included in SSI, was Medicaid- which would be very helpful because Zed's army insurance ran out when she was 6 months old and just because no insurance company could technically deny her coverage because of her disability, they could certainly make the premiums so high that we couldn't afford them.
Wendy was denied SSI, because Zed made too much money. I was fine with that because we were making ends meet okay and we didn't need the help of government check. However, the problem of insurance was still present. Zed joined the National Guard for a year, non-deployable. However, when this year is up, we have to figure something else out because if he rejoins and his unit deploys, he goes too. And I do not want to be a single mother with a disabled child.
That's when we started the process for the Katie Beckett waiver. Our first problem with the KB waiver was the case worker we were given. She's rude and about as useless as tits on turtle. Every question I asked about the parts of the forms i was supposed to fill out, she just skirted around answering the question, but saying things like "you need to include estimated monthly costs" apwhen I asked if I was supposed to include the cost of seeing her surgeon and specialist in the monthly costs of physician services. I had all the rest of the paperwork filled out by Wendy's pediatrician like I was supposed to and faxed it in. Now she calls and says it needs to be mailed in. Oh, and it has to be there before the 15th or her case is denied. Also, on part of the paper the doctor filled out is a recommended level of care that must be completed. The only options for that are, "hospital", "nursing facility", or "intermediate care facility for the mentally retarded". Well Wendy doesn't need any of those levels of care. She is taken care of just fine at home. So I asked for her to explain each further. She emailed me back saying:
"A level of care must be selected. If not, Wendy does not qualify for this waiver. Hospital- same level of care a hospital provides. Nursing home- same level of care a nh provides. And, IC/MR is intermediate care/mentally retarded facility."
That did not help at all.
And on top of having to deal with the fact that Wendy is most likely going to be denied, I also have barely gotten any sleep. Wendy didn't go to bed last night until 10, which is highly unusal- she's usually asleep by 4-6pm. And starting at 12, she woke up every single hour. So this mommy has had no sleep. I'm assuming she's probably teething, but whatever it is, I hope it passes soon, I don't think me or Zed will be able to function if this continues much longer.